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Cystic fibrosis screening added to tests done on Alaska babies

...tested shortly after birth for cystic fibrosis, an inherited disease that attacks...development of affected children. The Cystic Fibrosis Foundation says drug treatments...improve life for someone with cystic fibrosis. These can be started earlier...

http://www.juneauempire.com/stories/020107/sta_20070201014.shtml
News
In the Stacks: new fiction for young adults

...the rare Enki fish that are caught nearby. Given enough time, eating Enki fish will cure anything, even Dylan's cystic fibrosis, but 16-year-old Rudy is not only bored to tears, but angry at being taken away from his normal life, with...

http://juneauempire.com/art/2014-05-08/stacks-new-fiction-young-adults
Art
In the Stacks: New nonfiction DVDs

...look at current ordinary life in space."65_Red Roses" Eva Markvoort died in 2010 after a 25-year battle with cystic fibrosis, but before she died, she lived a vibrant and happy life as a writer, artist, student, friend, sister and daughter...

http://juneauempire.com/art/2013-11-28/stacks-new-nonfiction-dvds
Art
In the stacks: New nonfiction

...look at current ordinary life in space."65_RedRoses" Eva Markvoort died in 2010 after a 25-year battle with cystic fibrosis, but before she died, she lived a vibrant and happy life as a writer, artist, student, friend, sister and daughter...

http://juneauempire.com/art/2012-11-22/stacks-new-nonfiction
Art
Judge's ruling challenges US transplant system

...die on the waiting list like his brother did two years ago. Like Sarah, Javier's lungs have been destroyed by cystic fibrosis."The problem is, we can't build a system around making exceptions for everybody that isn't getting the transplant...

http://juneauempire.com/art/2013-06-07/judges-ruling-challenges-us-transplant-sy
Art
Memories of son inspire cyclist's nationwide mission

...comes from the fact that he has two lives to live." One is the life of his son and only child, Ron, who died of cystic fibrosis at age 26. "Doctors told us he would live to only 4 or 5, so my wife and I were glad to have him that long. But...

http://www.juneauempire.com/stories/071801/Loc_Cyclist.shtml
Local
Juneau Empire Story Archive

...we need brakes? At a Senate hearing Wednesday, there were sounds of both urgency and caution. A young man with cystic fibrosis worried out-loud about anything that would slow down the research. ``My battle with C.F. is a race,'' he...

http://www.juneauempire.com/stories/020800/Ope_comment.shtml
Gene therapy still is experimental

...we need brakes? At a Senate hearing Wednesday, there were sounds of both urgency and caution. A young man with cystic fibrosis worried out-loud about anything that would slow down the research. ``My battle with C.F. is a race,'' he...

http://www.juneauempire.com/stories/020800/Ope_comment.html
Opinion
Holiday flights raise money for kids with nerve disorder

...throughout the body and can affect the development of bones and skin. NF is not rare; it is more prevalent than cystic fibrosis, Tay-Sachs disease and Huntington's disease combined. NF affects 100,000 Americans, or one in every 4,000...

http://www.juneauempire.com/stories/121200/Loc_Flights.html
Local
Mattress man dances to success

...His celebrity has given him a chance to give back. When he first opened the Mattress Ranch, he met two girls with cystic fibrosis, a genetic disease that makes the body produce excess mucus and causes life-shortening complications. "I found...

http://www.juneauempire.com/stories/100409/loc_500793843.shtml

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